Keith’s GoutPal Story 2020 › Forums › Please Help My Gout! › Has anyone else got hereditary gout?
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May 7, 2015 at 8:57 am #21078GaryGuest
I usually take hot baths whenever a gout attack occurs, and it does work for me. A shower in the morning is a necessity, especially if my legs are affected. I sometimes get gout in the big toe, but because I believe I’ve had gout since I was 27 (I am 54 now), it has expanded to include my knees, ligaments, ankles and feet. I seem to have bad blood circulation in the feet. Sometimes the feet become completely numb. I have just recently been diagnosed with what my doctor says is rare form of gout that is 95 per cent hereditary, and 5 per cent diet-related. I haven’t had anything in my diet for years that would lead to gout. The gout was so severe, I ended up i a wheelchair with both knees locked at a 75 degree angle and unable to walk, and the pain was so severe it moved around to the knee ligaments and I was bedridden for two months. I am now standing up on crutches after two months. These are acute attacks and I need to take a daily dosage of uloric or febuxostat, colchicine and prednisone. Prednisone allowed me to stand up after two weeks, and killed all the pain. I am being weaned off that and my doctor will find another anti-inflammatory, as it is a cortisteroid. I have to take these drugs every day from now on due to the metabolism of my body and its inability to thwart off attacks and unpredicatability when attacks occur. Uloric is replacing allupurinon, having fared better in studies of gout patients. I have had severe gout attacks 5 to 8 times a year now for 10 years, a smaller amount before then, but it was never diagnosed as strictly hereditary and a different form than diet related gout. I have been on crutches 3-4 times a year for weeks on end for the last 15 years if not longer, and it has affected many things in my life from work to relationships. Doctors now no more about gout, but few back then understood that it could be primarily hereditary and I needed drugs all the time to combat it. Does anyone have this form of gout?
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